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Cancer Registration Dataset: GDPR information


Why and how we process your data for the Cancer Registration Dataset, and your rights.

Controller Joint: NHS Digital, NHS England
How we use the information (processing activities)

Public Health England supply cancer registration data to NHS Digital. This data is linked to other data held, to provide notifications on an individual's cancer status, be available to support research studies and to identify potential research participants for clinical trials, as well as non standard queries relating to the accuracy of the cancer registration information. Public Health England receive a return report and cancer data is available via NHS Digital's Data Access Request Service (DARS).

Does this contain sensitive (special category) data such as health information? Yes
Who are recipients of this data?

Public Health England

Is data transferred outside the UK? This data is not transferred out of the UK
How long the data is kept 20 years minimum after receipt of data from Public Health England
Our lawful basis for holding this data Legal obligation
Your rights
  • Tick Be informed
  • Tick Get access to it
  • Tick Rectify or change it
  • Cross Erase or remove it
  • Tick Restrict or stop processing it
  • Cross Move, copy or transfer it
  • Cross Object to it being processed or used
  • Cross Know if a decision was made by a computer rather than a person
How can you withdraw your consent?

Consent is not the basis for processing, individuals can request their cancer data is not held by contacting Public Health England

Is the data subject to decisions made solely by computers? (automated decision making) No
Where does this data come from? Public Health England and the Personal Demographics Service (PDS) dataset
The legal basis for collecting this data

Legal obligation (Direction), management of health or social care systems and services